UPDATE

Parker is continuing to breath on his own and remains stable. Jason says he is very "jumpy" and thrashes about which the doctors say is his body's reaction to coming off the many sedatives he has been on. He doesn't make much sound when he cries as his vocal cords still need to heal. Over the next few days they will continue to reduce medications and wean him off anything that he cannot go home with. All of this is certainly cause to celebrate.

But as Jason reminded me, at best we are merely back to where we were when Parker came into the hospital. He still has a case of pulmonary hypertension the likes of which the doctors have never before seen. I am reminded of the line from the Lord of the Rings that I quoted earlier when Sam says, "By all rights, we shouldn't even be here." The doctors don't understand why Parker is even alive and able to do what he is doing. (obviously, a miracle). Everyday (every moment) with this little guy is truly a blessing as no one knows what tomorrow will bring or how all of this will unfold in the future. More than ever we must all learn to live by the advice we have heard from many to live one day at a time.