Day Two

Last night before going to bed, Jason explained to me what they learned yesterday from the specialist. Pulmonary hypertension in an infant generally has an underlying cause though that is not always the case. But even if they can find the cause and do something to correct it, the hypertension generally does not go away. It is a lifetime condition and the best treatment is oxygen.

Jen, understandably, is pretty upset by the prospect of Parker being on oxygen indefinitely. Jason is trying to be optimistic and says in the overall scheme of possibilities, being on oxygen isn't all that bad. But it will be a whole change of life for them.

I encouraged Jason to seek out a blessing for he and Jen both. And I also reminded him to not project today's challenges into the future--they only have to take one day at a time. You saw the cute pictures Jen put in her email--I think Parker himself is going to teach us all a lot about the attitude we need to have as we face all of this.

We ended up all going to visit Parker tonight. We had to scrub and put on masks but we were able to go into his room for a few minutes. He was so happy to see Connor and Kelsey. Kelsey was very sad afterward and had a lot of questions which Jason and I did our best to answer and at the same time reassure her that things would work out. They miss him, and their Mom, and just want him to come home.